17 Responses

  1. Catherine Clarke
    Catherine Clarke at |

    Colleen, if PD has altered your life and caused you pain, it certainly has not diminished your curiosity to learn and understand. Take care.

    Reply
    1. Colleen Friesen
      Colleen Friesen at |

      Catherine. Thank you for this lovely perspective. I hadn’t really thought of it that way and your observation makes me feel hopeful.

      Reply
  2. Dee Dee
    Dee Dee at |

    Colleen, thanks for sharing. I will forward this to my cousins whose Mom has PD. They are researching marijuana (CBD THC) to relieve the involuntary jerky movements.
    You always have been an amazing human being. ????

    Reply
    1. Colleen Friesen
      Colleen Friesen at |

      Thanks for your kind words Dee Dee. I’m sorry to hear you know someone else in this ‘club’ that no one wanted to join.
      I used to think the One Day At A Time bumper stickers were kind of lame. Now I repeat it to myself on a regular basis. Funny how one’s perspective can change.

      Reply
  3. Karen Harmon
    Karen Harmon at |

    Love Readers Digest, Love you, Love your writing, Love your thinking…the words hmmm…can’t say as I love them, but somebody created those words, they all have meaning, so I guess we gotta love the brilliant people who are trying to figure out all the shit that keeps happening. Excellent blog, my friend xoxoxo

    Reply
    1. Colleen Friesen
      Colleen Friesen at |

      Blessings Karen. I have always loved the origin of words and thought I would like to study Latin. Never did…
      However, I noticed a lot of these words started with the prefix ‘hypo’ so I checked into that. Hypo means ‘beneath’ like in the word hypodermic (beneath the skin).
      Or it can mean ‘less than normal’ as in ‘hypoglycemic’’.
      It’s amazing how I can find myself in such random rabbit holes.
      Thank you for your observations and comments. They’re always on point.

      Reply
  4. Coral Thew
    Coral Thew at |

    Thanks for this. As my husband has PD, I am definitely learning new words every other day. Who knew?

    Reply
    1. Colleen Friesen
      Colleen Friesen at |

      Indeed Coral. Who knew? And thank god, we can’t know the future. I prefer dealing with things as they come up.
      Daring to imagine what’s coming (whether it’s about Parkinson’s or politics) is too much to think about.

      Reply
  5. Barbara Hiffman
    Barbara Hiffman at |

    A word or sentence that is important is that each individual will experience different symptoms and severity of the disease.
    My father had PD and had very minimal symptoms. I have PD and am working on that legacy. Thank you for the education. So important. I love that you give voice to life. Barbara

    Reply
    1. Colleen Friesen
      Colleen Friesen at |

      Barbara. You’re so right, the most important fact about PD is how uniquely it presents itself in each of us. I’m happy you have your father’s version. Thanks for your kind words.

      Reply
  6. Janyce
    Janyce at |

    If anyone can look at the challenges of learning the words associated with a diagnosis they didn’t ask for, is you my friend. Honestly I had trouble figuring out how to say some of those words. In my heart you will always be a beautifully articulate and caring human that finds the meaning in life. No matter what it throws at you. Sending you hugs and love from a place you once knew. I cherish the days we spent together and sorry that I didn’t get to see you before I moved.

    Reply
    1. Colleen Friesen
      Colleen Friesen at |

      Thank you so much Janyce. It’s lovely to imagine you in my other world of whales and tides.
      I know we’ll pick right up again whenever our paths cross.
      Meanwhile I’ll keep trying my hardest to do my very best.
      On the days it doesn’t work I resort to my mantra of, “This too shall pass.”

      Reply
  7. Paula
    Paula at |

    Thank you for sharing Colleen. Love reading your blogs.

    Reply
    1. Colleen Friesen
      Colleen Friesen at |

      Thanks for letting me know Paula. It’s comforting to know.

      Reply
  8. Gwen
    Gwen at |

    As I read this, I know these are words you wish you never knew! And I hate all of them. For you. For anyone who has faced a crisp or challenge or diagnosis in life that has opened a whole new dictionary of words they never knew or cared to know. Because why would you? Life,eh? Sometimes it just plain sucks and we have spend hours understanding what the new words mean in relation to our present and our future (selves.)

    I love you so much for sharing this journey with us. And especially so for people who can’t express it in words…both old and new.

    Reply
    1. Gwen
      Gwen at |

      Crisis … good lord … what is a crisp of life? ( love you auto- correct)

      Reply
    2. Colleen Friesen
      Colleen Friesen at |

      Gwen. I kind of like the sound of a crisp crisis. You might be onto something.
      And yes, it’s quite apparent that sometimes shitty stuff just happens. All any of us can do is deal with what is…the trick of course, is how one chooses to do that.
      Thanks, as always, for your support and thoughtful comments.

      Reply

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